The EURORDIS Winter School on Scientific Innovation and Translational Research consists of one week face-to-face training held in Paris in March and the training modules below, which are available online for anyone to use for free.
EURORDIS launched the training with the aim of deepening patient representatives’ understanding of how pre-clinical research translates into real benefits for rare disease patients.
The training equips participants with knowledge and skills so they are empowered to effectively participate in discussions with the researchers, policy makers and companies responsible for research or research infrastructures.
Expert speakers and researchers from across Europe deliver the face-to-face training sessions.
The first edition of the face-to-face training of the EURORDIS Winter School was held in March 2018 in Paris. It covered topics including the history of genetics, diagnostics, new technologies in gene therapy, and drug repurposing and included laboratory visits.
Next face-to-face training
The next face-to-face training of the EURORDIS Winter School will take place on 9-13 March 2020 at the Imagine Institute in Paris. To apply for this training, please fill in this application form. The deadline for applications is 30 August 2019. The results will be announced by mid-November.
Take part in free online training
Learn more about rare disease research at a time and place that suits you! Take the free online modules below. Each module includes a lesson and quiz.
The below online modules are from the first edition of the EURORDIS Winter School. Full online modules will be developed following the 2019 edition of the EURORDIS Winter School. The conditions of use for all EURORDIS training have been licensed with Creative Commons.
For more information click "LINK TO ORIGINAL" below.